New U.S. Initiative Launches to Accelerate Rare Disease Treatments
A new U.S. initiative, the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP), has been launched to speed up treatment innovation for rare diseases. The platform, introduced at the RDCA-DAP 2021 Virtual Workshop, aims to share patient data and promote data standardization.
RDCA-DAP is a collaborative effort involving the FDA, NIH, and C-Path. It's a partnership between NORD, C-Path, and the FDA. The platform includes rare disease data from clinical trials, observational studies, patient registries, and real-world data, providing workspaces for advanced analytics.
RDCA-DAP seeks to address the lack of FDA-approved treatments for over 90% of the estimated 7,000 rare diseases. It aims to understand disease progression, develop mathematical models, and improve clinical trial design. By integrating and making more accessible disease data from multiple organizations worldwide, RDCA-DAP encourages more research in rare diseases and helps find solutions to bottlenecks in drug development.
Interested parties can access or submit rare disease data through the RDCA-DAP platform. The initiative is expected to enhance diagnosis, treatment, and drug development for rare diseases by promoting collaboration and dialogue among stakeholders.
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